What we do

Ocular Melanoma UK is a registered charity supporting those affected by ocular melanoma. We aim to help patients and their families by providing accurate, up-to-date information and emotional support via our website, helpline and online forums. Our vision is a world where ocular melanoma patients are given the information, support and treatment they need.

Being a small charity, we get to know the people we support and some of the challenges they face. We have built a community within the UK for patients and their families. This community helps to remove isolation and shares knowledge on coping with vision loss, treatment effects and other related concerns.  We have built relations with our counterparts in Europe, America and Canada, so our community has a louder voice and best practices can be shared.

Our mission is to change the landscape for people with ocular melanoma cancers by uniting the wider community, so that every person receives the support, information, and treatment they need to live well for longer.

Our Values underpin how we will achieve these goals and so we strive to ensure these come through in our daily interactions.

What we can help with

Emotional support.  We can offer information and support to anyone going through diagnosis, treatment, and adjustment to eye cancer, and to friends and family who need someone to talk to.

Meeting others.  We can put you in touch with other patients or family members, whether that be online, on the phone, or in person.

Understanding pathways.  We can help you interpret the national guidelines for uveal melanoma.  We may be able to signpost you to the right support and have information on latest developments, such as clinical trials that might be of interest.

What we cannot help with

Clinical advice.  Only your clinical team can tell you whether a treatment is right for you. We are not able to provide any Clinical Advice, if you are experiencing side effects or concerning symptoms, you should speak with your clinical team, 111 or 999 accordingly.

Legal and financial advice.  Our call handlers do not have training in legal or financial matters, but they can sign-post you to other organisations that may be able to help.