Community Support

Meet others
virtually

At Ocular Melanoma UK, we want to bring people together as we can make Ocular Melanoma feel a little less rare.

Join us most weeks on a Tuesday evening or Friday morning to meet other people online and talk through what is on your mind.

This event is open to members and non-members.

Meet others in person

As part of our community support programme, our small team of volunteer Local Ambassadors are placed throughout the UK and arrange face-to-face meetings in their local area. These are for patients, or anyone affected by ocular melanoma, including family and friends.

These events are for members only, so join us today to hear more about upcoming events.

Facebook Community Groups

Our groups are open to members of Ocular Melanoma UK, and have the privacy level “closed”, which means that only members of the group can see the posts.  If you are not a Facebook user, you may want to consider registering for a profile so you can access this tremendous source of support.  If you need help signing up for Facebook, please call our Helpline for assistance.

We also host regular meetings on Zoom for members and non-members to speak to others with similar experiences.  You can find details of these meetings by visiting our Events page.

Ocular Melanoma UK Patient Group

This group is for patients only.  It is meant as a safe place for patients to let off steam, ask questions, get support and chat about anything they want.

Ocular Melanoma UK Family & Friends

This group is for family members only.  It is the sister of the patient group, and has the same aims.

Ocular Melanoma UK Bereaved Support

This group is a place for those who have been sadly bereaved.  If your loved one died of ocular melanoma, please join us in supporting one another in this group.

Ocular Melanoma UK Knowledge and Strategy

This is the main group for sharing ideas and information about the world of ocular melanoma, sources of funding and cutting-edge treatment options.

Ocular Melanoma UK Welfare Support

This is the group to join to find out more about sources of help available to those with ocular melanoma. If you are applying for benefits such as PIP and DLA, this is the group for you.

Ocular Melanoma UK Awareness and Fundraising

This group is open to members and non members, its for anyone who is interested in supporting our fundraising and awareness raising efforts.

Become a member today

We will keep you updated with any latest developments.  It’s easy and free for you to join us.  Members will receive:

  • Access to our online community
  • Monthly E-bulletins
  • Discounts on items in our online shop section
  • Access to free, expert psychological & emotional support counselling
  • Free entrance to our annual conference, member meet ups and annual general meeting.

Contact us for support

The Ocular Melanoma UK helpline offers confidential support to people living with Ocular Melanoma and their loved ones.

Lines open between 10am – 7pm Monday – Friday

Email us on helpline@omuk.org

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