This Rare Disease Day, we were fortunate to talk to a range of radio stations about ocular melanoma as a rare condition. Our Chief Executive Officer & Founder, Jo Gumbs, was joined by our members, Jamie and Carol, who shared their lived experience with this rare cancer.

Both Jamie and Carol spent time explaining the impact of having a rare condition in relation to accessing treatment and how that has led to them both crowdfunding for life extending treatment.

Here at Ocular Melanoma UK, we believe everyone affected by ocular melanoma should have access to treatment, support and better care pathways. Jamie and Carol’s experiences highlight exactly why this is so vital.