Looking Ahead Together
Together, we can make this rare cancer a little less rare and as the UK’s only charity dedicated solely to people affected by Ocular Melanoma, we use our voice to advocate for change. From funding support services to lobbying NHS England and pushing for new treatments, we are committed to ensuring anyone affected by this rare cancer feels seen, heard and supported.
How We Are Advocating for Change
At Ocular Melanoma UK, we put our hope for the future into action through focused advocacy, campaigning, and support for all those affected by this rare cancer.
Our Work on Tebentafusp
- Part of the successful campaign for approval of Tebentafusp, the first treatment proven to extend survival for people with metastatic uveal melanoma (HLA-A*02:01-positive).
- This breakthrough means UK patients now have access to a treatment that extends life while maintaining quality of life.
Our Work on Chemosaturation
- Highlighted delays in NHS England processes that block access to Chemosaturation therapy.
- Issued press releases and pressured government on this urgent issue.
- We continue to campaign so this life-saving therapy is available on the NHS.
Our Work with the Medical Community
- Partner with clinicians and researchers to stay at the forefront of new treatments and trials.
- Created a Clinical Trials page to share opportunities with our community.
- Ensure patient voices are represented in conversations about cancer care and best practice.
Our Support Work
- The UK’s only dedicated charity for people affected by ocular melanoma.
- Provide support via our helpline, online forums, Facebook page, and psychological support services.
- Fundraise to ensure no one faces ocular melanoma alone.
How you can be part of our hope for the future
More from our Online Hub
About Ocular Melanoma
Want to know more about Ocular Melanoma? Visit our page to find out about treatment types, early signs and how it can be detected.
Patient Stories
Hear real life stories from members of our community, ranging from what life looks like after diagnosis to their experience of receiving treatment.
Our Online Hub
This Ocular Melanoma October, we want to raise awareness of this rare cancer by coming together to bring Ocular Melanoma into focus. To go back to our online hub, click the button below!
Why we need your support?
There are around 600 new eye cancer cases in the UK every year.
1-2 People every day are diagnosed with eye cancer.
Over 5000 people in the UK are living with eye cancer.
Become a member today
We will keep you updated with any latest developments. It’s easy and free for you to join us. Members will receive:
- Access to our online community
- Monthly E-bulletins
- Discounts on items in our online shop section
- Access to free, expert psychological & emotional support counselling
- Free entrance to our annual conference, member meet ups and annual general meeting.
